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Intravenous steroids Options
rosie1157
#1 Posted : Thursday, March 07, 2013 2:22:49 PM Quote
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Location: St. George, Bristol
Hello

Has anyone had methyl-prednisalone intravenously. I went onto the day ward for two alternate half days for this treatment. Side effects of steroids greater than the relief it was supposed to give. I had two great days but then down hill again. I would be interested to hear any one elses experience.

Thanks

Rosie xRollEyes
Rosie
zena_mary
#2 Posted : Thursday, March 07, 2013 8:00:14 PM Quote
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Location: Powys
Hi Rosie, I have been admitted into hospital on a couple of occasions for steroid infusions during bad flares in the last 2 years.
Both times they have brought very quick relief.
The first time it did not last for much longer than a month but I was very busy and quite stressed at the time, we were moving house. The second time I continued with oral steroids afterwards and it helped a lot, but I was able to rest much more after it. I think how much you are able to rest and relax makes such a difference to the success of these drugs and the progress of RA.
They did have some side effects for me, mainly a very rosey face, could even be called a beetroot look!! and feeling as high as a kite!!
Apparently many moons ago, steroids were given generally by infusion, but not so much now.
Be interesting to hear from others, particularly those who have had RA for a long time.
Zena x
lisapamela
#3 Posted : Monday, March 11, 2013 2:26:39 PM Quote
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Joined: 12/5/2009
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Location: Blackburn, Lancashire
Hi Rosie

When I was first diagnosed 12 years ago I was on intravenous steroids in hospital 4 times in 2 years. The side effects were a rosy round face and a pinpoint rash on my tummy. I was also on 25mg of oral steroid tablets daily for 4 years. The intravenous steriod was only used when I had very bad flares.

At the end of 4 years I was put on Enbrel and was gradually brought off steroids over a 2 year period.

I hope that you will feel better soon

Best wishes
Lisa



jenni_b
#4 Posted : Monday, March 11, 2013 3:28:25 PM Quote
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Location: nr Southampton
Hello

I've had this a few times.
I have to say my rheumatologist have by and large stopped doing this.
That's because the evidence is that the benefit is short lived.
And the side effects higher due to the huge amount of steroid given.
They've found depomedrome injections better.
So they tend to give them and repeat them as necessary.

Jenni x
how to be a velvet bulldoser
Jane.
#5 Posted : Monday, March 11, 2013 4:18:31 PM Quote
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Location: where the sun always shines :o
Smile Hello Rosie
Not had intravenous steriods, only predis tablets for 6 months when I was first diagnosed. And the steriod injections from rheumatology as and when......which I would love right now or two or three or four!! But I can't get to hospital - can't drive....the downside of relying on my hubbySad

Sorry I can't help
Xxx
jenni_b
#6 Posted : Monday, March 11, 2013 5:06:14 PM Quote
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Location: nr Southampton
Jane, the gp can come and give you a stab at home. I will message you on twitter xx
how to be a velvet bulldoser
rosie1157
#7 Posted : Tuesday, March 12, 2013 1:59:50 PM Quote
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Joined: 9/30/2010
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Location: St. George, Bristol
Thank you for all your replies. I have had joints injected several times, usually every 8 weeks or so, but this was the first time I had intravenous steroids. Oral Prednisalone gives me really bad headaches so I stopped taking them a long time ago. I am due to see consultant again this month so will ask about depomedrome.

Cold weather is a killer for joints though, isn't it.

xx
Rosie
Valerie-R
#8 Posted : Sunday, March 17, 2013 1:59:56 PM Quote
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never even touched me waste of time
Anne-P
#9 Posted : Sunday, March 17, 2013 4:50:30 PM Quote
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Joined: 2/14/2011
Posts: 301
Location: South Hampshire
Hi rosie

I've had these a number of times in the past when the RA was still trying to be got under control (about 3 years ago) !! I had 3 infusions in one year... that was the max I was allowed, then I had to go on steroid tablets... which I am still on.

The infusion gave me a very red face... made me look like I was sunburnt for a week - gave me huge amounts of energy and they lasted about 2/3 months. I didn't have any horrible side effects at all.

For me they were well worth having. My consultant was happy to time then just before I was going on holiday!! THey certainly gave me a high!!! I found the injections they do in the clinic did nothing at all for me!

I'm now on humira which is working pretty well... although I still need the steroids as well (just 3 mg a day).

Anne

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